This Year is Finally Coming to an End

I hope everyone is doing well. Bailey had her appointment with the opthamologist on Thursday and he determined she needs surgery on her eyes. Other than that she is doing very well. I plan to call after the new year to make an appointment with the surgeon.
Aubrey is doing great. We all went to the zoo today and she really enjoyed herself. Keith and I have been on vacation since Christmas... well I'm on temporary permanent vacation I guess, if that makes sense. We've enjoyed ourselves as much as possible, but it has been a difficult week.
I hope everyone enjoys the new year.
Tricia

No More Doctors, but Some Runny Noses

Happy Holidays everyone! Bailey is still doing very well. Bailey has an appointment next Thursday with the Opthamologist, and then no more appointments for her until the middle of January. Aubrey is still doing very well. She had a cold most of the week, but she seems to be doing much better. I hope you all have a wonderful week and we'll talk to you soon.
Tricia

Doctors, Parties, and Shopping. It's Christmas Time!

Well this was doctor week. Everything went well. Bailey saw GI and he said she looks great. Still no news on when we'll be able to give her a bottle. She also saw her pediatrician and he gave her immunizations.
We're all doing very well. The girls had their Christmas pictures taken last week, and they were so cute! The next few weeks are busy busy busy... as I'm sure it is for everyone. We have our Down Syndrome Christmas party, my dads birthday and of course holiday celebrations with our families. Oh, and of course, last minute shopping.
We took the girls to see a beautiful Christmas display at a local church. Aubrey loves Christmas lights so she really seemed to enjoy their display. We also, for the first time, decorated the tree with HER. That was interesting. She loved decorating, but it was difficult trying to keep her from breaking things.
Tricia

Excitement is in the Air

Well Thanksgiving is over and now the Holiday season has begun. Aubrey seems so excited about Christmas. She loves the decorations, and shopping... but has a fear of Santa. We enjoyed our Thanksgiving. We spent half the day with Keith's family and the other half with mine. My sister was in town so we spent several nights this week visiting our parents. She flew home today and was involved in a minor accident while on the employee bus. Thankfully everyone is okay, but she is a bit sore. I hope everyone had a safe holiday.
Also, please keep Micah in your prayers. He is still in the hospital and it's possible he will be there until his next treatment in early December.
Tricia

Happy Thanksgiving!

Happy Early Thanksgiving all! Bailey had an excellent appointment with the Pediatrician today. We don't see him again for 3 weeks! I'm so excited to finally get weekly appointments behind us. I haven't had to do too much as far as appointments go because my parents have been taking her (it's been busy at work). So, I'm sure they'll be happy to get a break for a few weeks. He increased her feed rate once again, so hopefully she'll start gaining weight.
After the appointment we took a trip to Chuck E. Cheese's and the girls, well Aubrey, had a great time. She was so wonderful, and didn't throw a tantrum when it was time to go home. She's getting brave too. She rarely plays on the slides, but today she made some attempts. I'm so proud of her. She and Bailey both amaze me every day.
Once again, I hope everyone has a great Thanksgiving, we really have so much to be thankful for this year.
Tricia

Heart Worries... GONE!

Bailey had her appointment with the Cardiologist today. It was a great appointment. No more Lasix! We're so happy. Now, we just need to eliminate two more medications and she will be free of meds. Hopefully our appointment next month with GI will end the need for those meds. She's only gained 6oz since last month, but they increased her rate of feed last week so I'm hoping she'll start gaining more. He also said we can put the heart worries on the back burner because she looks so great! Now we just need to get rid of the tube in her belly and we can celebrate even more. We have an appointment tomorrow with the Pediatrician so hopefully all looks good there. We also had a nice day because we spent it with Papa. Hopefully he enjoyed being with us today as much as we enjoyed being with him. Ohh... Aunt Kelli will be here tomorrow for a few days and Aubrey will be SO excited to see her. Aubrey is a small version of her Aunt Kelli. They both have great personalities that we all love.
Tricia

Weight and Eyes

Well everything went well with the Pediatrician yesterday. She got her first dose of flu shots and she'll get her second dose in a month. He's concerned about her vision in her right eye so we have an appointment in December with a Pediatric Opthamologist. She also hasn't gained weight like she should so he increased her flow from 26 to 27 cc's per hour. We're still on tube feeds and will continue with that until I can get feeding therapies for her for at least 3 months. That's been a major struggle for me because I can't seem to get a return call from her early intervention coordinator. It's a great system when it works.
Aubrey is doing much better and if you saw her today you would never know she was covered in "spots" last week. She got Shrek the Third tonight, so she's a happy little girl.