Sunday, October 28, 2007

Thank You Janice!

I love the new cardiologist! We made an excellent decision, and thank you so much Janice for the recommendation. He's excellent! He said she looks great, and that he does hear a slight murmur, but that's to be expected. The echo showed mitral valve regurgitation, but all is okay. He'll just continue to follow her, and hopefully she'll be surgery free for the rest of her life. She is also feeling better, but has been a bit fussy this weekend. I spent today shopping with the girls, and we had such a good time. Well... I did! We have an appointment with the pediatrician Friday so this will probably be my last update until then. Hope everyone else is doing well.

Tuesday, October 23, 2007

Bailey's Looking Good and Fall Festival

Bailey had an appointment with the pediatrician and great news... her lungs are clear! She's also lost a little weight, but it's probably because she's been a bit sick. As you can see in her recent pictures, she's a cute little chunk so I think she'll be okay!
This will be my final Buddy Walk update, until next year. Over $100,000 was raised for the Down Syndrome Association of Central Florida from the family teams and corporate sponsors have committed to over $40,000! That's excellent! There were over 100 family teams and 4,000 participates. It was such a fun and inspiring event. Hopefully some of you can join us on Bailey's Team next year.
Tonight we have a Fall Festival at Bailey's "school" and on Thursday we have an appointment with her new cardiologist, so I'll update more then.

Monday, October 22, 2007

We're Home!

We're home. Quick update because the laptop has 10 minutes left on the battery. The hospital doc said she was in respiratory distress and that's the reason for the admission. She seems to be doing slightly better, but she's still having a difficult time breathing. We're doing breathing treatments and we'll follow up with her pediatrician this week and in addition to that appointment we'll be seeing her new cardiologist this week. Everyone is sleeping right now. Aubrey still isn't feeling well, Keith is starting to get a cold, and I decided hanging out in the ER would be a great way to spend my Saturday, not that Bailey's hospital room wasn't fun enough. But, I too should start getting better soon. They gave me some meds and rehydrated me and I was back with Bailey in her room before the night was over. Well the battery is almost dead, and I need some rest... back to work tomorrow. I hope everyone stays healthy.

Friday, October 19, 2007

Back in the Hospital

I'm home for just a few minutes and I thought I would update on our family. First, Bailey has a respiratory infection and was admitted to the hospital this afternoon. She's at Lakeland Regional, so at least she is close to home this time. She'll probably be in for the weekend, and hopefully no longer. I'm home now packing bags and Keith is with her. Keith will be spending some time at home this weekend with Aubrey and I'll take hospital duty. Aubrey is also sick. I guess I infected my family. Hopefully Keith will stay healthy. I'll update more when I know more.

Tuesday, October 16, 2007

She's Doing Great... but I'm Sick

Just a quick update on Bailey. She is still doing very well. She had an appointment yesterday with her pediatrician and she hasn't gained much weight over the past 2 1/2 weeks so he increased her flow of formula (she still has a feeding tube). She'll see him again on Friday. He'll check then to see if she's tolerating the increase. We see our new cardiologist next week. I'm so happy we were able to get an appointment with him. I've heard great things about him, but honestly I think anyone would be better than what we had.
I'm a little under the weather and I'm trying so hard to keep Bailey and Aubrey from getting sick. I'm home a few hours early from work today and I'm hoping the extra rest will help.
Oh, and the Buddy Walk was great! We had so much fun. Grandma and papa were there, and of course me, Aubrey, Keith and Bailey. Aubrey had so much fun. Characters from Universal were there, so she got to see her favorite, Curious George. I'll update pictures soon. Thanks again to all that donated to this wonderful organization.

Friday, October 12, 2007

It's Buddy Walk Time!

Bailey is still doing very well. She spent the afternoon taking a little road trip with her mommy and Aubrey spent the afternoon at the zoo with her daddy.
I want to thank everyone that has donated to Bailey's Buddy Walk page. Tomorrow is the big day and we've raised over $800.00 for the Down Syndrome Association of Central Florida. That's amazing! It's much more than I ever expected. This group has helped us so much. It provides support families need and has helped us learn what we can do for Bailey to help her live a happy and healthy life.
Once again, thank you so much everyone for the donation. We're walking tomorrow in Orlando, and I'm excited to say Bailey will be joining us! If I had been asked a month ago if she'd be at the walk I would have been unsure, but she's made an amazing recovery and we can't wait to show off our beautiful little girl. For those that haven't seen her Buddy Walk page, here's the link.
Thanks again! I really appreciate all the support we've had over the past 5 months.

Friday, October 5, 2007

ER Time Again

Well it's been a few days since updates and things were going very well. However, last night we had to take a little trip to the ER. Bailey's incision is infected and it seemed to be getting worse. She's on antibiotics because of her g tube infection and they decided to have her continue taking those and return if her temperature increases. I really thought our hospital visits were over for a while. It's bad when the ER docs recognize you. Hopefully we'll have an uneventful weekend, and she'll improve each day.
Oh, and Kelli... I hope you got a call last night that all was okay. I was half asleep when we got out and I forgot to call you. Love you!

Wednesday, October 3, 2007

Quick Little Update

Bailey is still doing very well and she's still off oxygen. We haven't had any doctor visits this week, but we're still having some tummy problems. We're doing the Buddy Walk next Saturday, and I look forward to seeing friends and getting Bailey out of the house for a while.