Saturday, November 24, 2007

Excitement is in the Air

Well Thanksgiving is over and now the Holiday season has begun. Aubrey seems so excited about Christmas. She loves the decorations, and shopping... but has a fear of Santa. We enjoyed our Thanksgiving. We spent half the day with Keith's family and the other half with mine. My sister was in town so we spent several nights this week visiting our parents. She flew home today and was involved in a minor accident while on the employee bus. Thankfully everyone is okay, but she is a bit sore. I hope everyone had a safe holiday.
Also, please keep Micah in your prayers. He is still in the hospital and it's possible he will be there until his next treatment in early December.

Wednesday, November 21, 2007

Happy Thanksgiving!

Happy Early Thanksgiving all! Bailey had an excellent appointment with the Pediatrician today. We don't see him again for 3 weeks! I'm so excited to finally get weekly appointments behind us. I haven't had to do too much as far as appointments go because my parents have been taking her (it's been busy at work). So, I'm sure they'll be happy to get a break for a few weeks. He increased her feed rate once again, so hopefully she'll start gaining weight.
After the appointment we took a trip to Chuck E. Cheese's and the girls, well Aubrey, had a great time. She was so wonderful, and didn't throw a tantrum when it was time to go home. She's getting brave too. She rarely plays on the slides, but today she made some attempts. I'm so proud of her. She and Bailey both amaze me every day.
Once again, I hope everyone has a great Thanksgiving, we really have so much to be thankful for this year.

Tuesday, November 20, 2007

Heart Worries... GONE!

Bailey had her appointment with the Cardiologist today. It was a great appointment. No more Lasix! We're so happy. Now, we just need to eliminate two more medications and she will be free of meds. Hopefully our appointment next month with GI will end the need for those meds. She's only gained 6oz since last month, but they increased her rate of feed last week so I'm hoping she'll start gaining more. He also said we can put the heart worries on the back burner because she looks so great! Now we just need to get rid of the tube in her belly and we can celebrate even more. We have an appointment tomorrow with the Pediatrician so hopefully all looks good there. We also had a nice day because we spent it with Papa. Hopefully he enjoyed being with us today as much as we enjoyed being with him. Ohh... Aunt Kelli will be here tomorrow for a few days and Aubrey will be SO excited to see her. Aubrey is a small version of her Aunt Kelli. They both have great personalities that we all love.

Thursday, November 15, 2007

Weight and Eyes

Well everything went well with the Pediatrician yesterday. She got her first dose of flu shots and she'll get her second dose in a month. He's concerned about her vision in her right eye so we have an appointment in December with a Pediatric Opthamologist. She also hasn't gained weight like she should so he increased her flow from 26 to 27 cc's per hour. We're still on tube feeds and will continue with that until I can get feeding therapies for her for at least 3 months. That's been a major struggle for me because I can't seem to get a return call from her early intervention coordinator. It's a great system when it works.
Aubrey is doing much better and if you saw her today you would never know she was covered in "spots" last week. She got Shrek the Third tonight, so she's a happy little girl.

Monday, November 12, 2007

I Appreciate All You've Done

Aubrey is doing better. She still has some spots, but thankfully they don't itch! We're all doing pretty good. We're hoping to stay healthy so we can join our friends for an early Thanksgiving celebration this weekend. We really have a lot to be thankful for this year. It's been full of challenges, more than I ever thought I could handle. But, I now realize how important the support of our family and friends has been in helping us get through this year. I really appreciate everyone for being so helpful and understanding. This will probably be my last update for a few days. Bailey sees the Pediatrician on Wednesday and her Cardiologist next Tuesday. I'll update if we get new info.

Saturday, November 10, 2007

Bumps, Fever, What Could This be?

Things are still going well for Bailey. She and Aubrey are both taking their afternoon naps. We planned to go to the zoo today, but Aubrey decided she would get sick instead. Her temp stayed around 101-102 the past few days and this morning when she woke up she had little bumps on her arms, hands, legs, face, and feet. So, of course I thought chickenpox! Well we went to the doctor and he looked in her mouth and it's covered with bumps too! Poor baby! So, it seems she has hand, foot, and mouth disease. The doctor said the bumps aren't usually on the entire body, but she decided to be different and have them everywhere. Of course, it's contagious so we'll see what happens to the rest of the family. I was healthy until I had children, but they're worth it! Thankfully it won't last long so we'll be able to enjoy Thanksgiving with our families.
Here's an update on Micah, the little boy I mentioned a few days ago. He started chemo and it has made him very fussy and sick. He'll receive treatments for 3 days and then they'll just watch him closely until his counts go back up. Please continue to keep them in your prayers.

Thursday, November 8, 2007

Happy Birthday Peyton!

Happy Birthday Miss Peyton!
Bailey is still doing very well. It does look like her g-tube is infected once again. She's appointment free until next week. She'll see her pediatrician next week, cardiologist the following week, and I believe GI 1-2 weeks after that. Aubrey is also doing very well. Her staph infection has cleared up. We're looking forward to the holiday season and look forward to spending time with our families.
I'm going to ask for some prayers for another family. They belong to a support group we go to in St. Petersburg. Their son, Micah, has been through everything Bailey has, and yesterday he was diagnosed with Leukemia. He's only 17 months old and has been through so much already in his little life. Thank you all for keeping this family in your thoughts and prayers, also they have a little bundle of joy due very soon.

Friday, November 2, 2007

We're Going to Elmo!

Bailey had her appointment with the pediatrician today. Everything is going well. She received her immunizations today. Grandma and papa took her because I was working, so I missed the tears! Whew! Her doctor wants to continue the breathing treatments for 2 more weeks. He'll check her again at that time, plus she'll be seeing her cardiologist and gi doc around the same time.
Aubrey is doing well. She has another staph infection, so she's on antibiotics until it clears up. We're taking her to see Elmo tomorrow. This will be her second time seeing him and I hope she enjoys this show just as much as she did the last. She amazes me every day. She has so much to say and she's so descriptive. She sees "beautiful lizards", "pretty flowers", and the "big moon". She also enjoys being a little princess and loves her little sister. Sometimes I think she's more excited to see Bailey than anyone else... well anyone except papa. I hope everyone has a great weekend and I'll update when there's more.