It's hard to believe the weekend has come and gone. Dad is still at Tampa General. They will hopefully release him tomorrow. They are going to do some light exercises with him tomorrow with the hopes that he'll have an "episode" while being connected to the monitors. We've seen him have these, but unfortunately it happens when he is in certain surroundings, which isn't happening at the hospital.
Bailey and Aubrey are both doing great. I took Aubrey to church today and they said she was very well behaved. I hope that is correct. She doesn't always say the most appropriate things, but I guess most children are that way.
Trish
Sunday, March 30, 2008
Friday, March 28, 2008
The Week in Review
Once again it has been a busy week. We spent Easter at Brock and Carolyn's house. If you're reading this I want to thank you for inviting us to join your family in their celebration. Keith's dad, Molly, Tim, and friends of Carolyn's were there. We enjoyed our visit and Aubrey really enjoyed the Easter egg hunt. Bailey, of course, enjoyed the attention. She really has a way of making people fall in love with her. That night we had a little family emergency, but all is okay now.
Bailey had an appointment with her pediatrician this week. He would like us to start giving her apple juice with the hopes that she'll have a less difficult time having a bowel movement. Other than that minor problem she looks great. She's still continuing to gain weight and her lungs are clear. Good news all around! She also had PT twice this week and next week she'll start speech therapy. I hope we'll have the opportunity to feed her by mouth soon, and I'd love to see her lose the tube. Then, she'll be free of ALL medical equipment. Her eyes are also looking great, but we've noticed one is not completely straight. This is very normal for children with her history and we were prepared by the surgeon for a possible second surgery.
Aubrey is doing great. She really amazes me. I have a hard time remembering that she's only two. I took her to my parents tonight to walk their dog and she held the leash and made sure Debbie went potty. I feel that she's reached a point where she can possibly spend time with people other than family, so Sunday will be the first time I will take her to church. I'm hoping that she doesn't cause any problems. If it's as easy as I hope, I'll be taking Bailey soon.
Keith and I celebrated our third anniversary yesterday. We did a very simple celebration. Funds are not as nice as they once were. I can't believe how much things have changed for us over the past three years. Keith graduated college, we have two beautiful girls, purchased a house, I got a great promotion at work, I got laid off, and now I'm starting over again. I must say this past year has been one of the most difficult times of my life. I've survived, but there have been many times I really didn't want to get out of bed. I'm very thankful for all the support I've been given, and the new friends I've made during the changes we've encountered. I appreciate each person we've met during this journey, and they have made me hopeful for the future.
Mom and dad are spending this weekend at Tampa General. Dad is having some tests done and I hope that his numerous tests he's been through since 2005 will soon come to an end. I can't imagine going through what he and mom have had to go through. They are two very strong people and I hope to remain as strong as they are as I grow older.
This weekend is our free weekend. There is nothing on the calendar. So, tomorrow Keith will take his mom grocery shopping, then she is keeping Aubrey for the rest of the afternoon so we can clean house. Hopefully we'll finish tomorrow and be able to relax Sunday.
Also, please keep Shaun in your prayers. He had his adenoids removed today and also had tubes put in his ears. He is only a year old and this was his first surgery. Hopefully, he'll be returning home tomorrow.
Trish
Bailey had an appointment with her pediatrician this week. He would like us to start giving her apple juice with the hopes that she'll have a less difficult time having a bowel movement. Other than that minor problem she looks great. She's still continuing to gain weight and her lungs are clear. Good news all around! She also had PT twice this week and next week she'll start speech therapy. I hope we'll have the opportunity to feed her by mouth soon, and I'd love to see her lose the tube. Then, she'll be free of ALL medical equipment. Her eyes are also looking great, but we've noticed one is not completely straight. This is very normal for children with her history and we were prepared by the surgeon for a possible second surgery.
Aubrey is doing great. She really amazes me. I have a hard time remembering that she's only two. I took her to my parents tonight to walk their dog and she held the leash and made sure Debbie went potty. I feel that she's reached a point where she can possibly spend time with people other than family, so Sunday will be the first time I will take her to church. I'm hoping that she doesn't cause any problems. If it's as easy as I hope, I'll be taking Bailey soon.
Keith and I celebrated our third anniversary yesterday. We did a very simple celebration. Funds are not as nice as they once were. I can't believe how much things have changed for us over the past three years. Keith graduated college, we have two beautiful girls, purchased a house, I got a great promotion at work, I got laid off, and now I'm starting over again. I must say this past year has been one of the most difficult times of my life. I've survived, but there have been many times I really didn't want to get out of bed. I'm very thankful for all the support I've been given, and the new friends I've made during the changes we've encountered. I appreciate each person we've met during this journey, and they have made me hopeful for the future.
Mom and dad are spending this weekend at Tampa General. Dad is having some tests done and I hope that his numerous tests he's been through since 2005 will soon come to an end. I can't imagine going through what he and mom have had to go through. They are two very strong people and I hope to remain as strong as they are as I grow older.
This weekend is our free weekend. There is nothing on the calendar. So, tomorrow Keith will take his mom grocery shopping, then she is keeping Aubrey for the rest of the afternoon so we can clean house. Hopefully we'll finish tomorrow and be able to relax Sunday.
Also, please keep Shaun in your prayers. He had his adenoids removed today and also had tubes put in his ears. He is only a year old and this was his first surgery. Hopefully, he'll be returning home tomorrow.
Trish
Saturday, March 22, 2008
Visiting and Cleaning
Today was a nice, stress free day. We went to lunch with Shelby, her daughter, and boyfriend. Service was a bit slow, but that gave us plenty of time to visit. It was so nice to see them. I remember before we had families we spent almost every weekend together. Now, we see each other maybe three times per year (birthdays). Then, Aubrey went to her Granny's house for the rest of the afternoon so I could clean house and so Keith could go grocery shopping.
We will be spending tomorrow with Keith's family. We're having an Easter egg hunt around 4:00pm and dinner will be soon after. Other than that, tomorrow will be a quiet day.
Trish
We will be spending tomorrow with Keith's family. We're having an Easter egg hunt around 4:00pm and dinner will be soon after. Other than that, tomorrow will be a quiet day.
Trish
Friday, March 21, 2008
Happy Down syndrome Day!
It's March 21st, 3/21, it's World Down syndrome day! It's also Good Friday. This is going to be short and sweet because I'm exhausted and it's well past my bedtime. I wanted to let everyone know they can visit http://www.dsapolk.org/ to see pictures from the Easter egg hunt and visit to the fire station last weekend. The children really seemed to enjoy getting in the big truck!
Trish
Trish
Tuesday, March 18, 2008
I'm Sick
Well I guess it's my turn to be sick. I thought I could stay healthy. Especially starting a new job, I'd like to be healthy. I guess that just isn't possible. My days are long. Very long. I know, or hope, once training is complete things will get easier. I still feel like an overpaid cashier, but hopefully I'll begin training on more difficult tasks soon. The girls are still healthy. Lets hope it continues this way.
Trish
Trish
Friday, March 14, 2008
Friday, Friday, Friday!!!
Whew! I survived week one. Monday and Tuesday were okay, but the rest of the week I was up between 4:00am and 4:30am to begin my day. Yes, I know, I'm a BIG baby! It will get better, but the past 3 months have made me very spoiled. I miss my little girls. I miss the smiles, giggles, and the fun we had. I don't miss the tears, whining, and attitude.
It's nice working again. However, I miss knowing what I'm talking about. Management is management, but the terms are different from one industry to the next. So for me, min/max is Build To, POS is something totally different (I forgot what it is now), but VOCs are still VOCs... whew! Sometimes I get very angry about the situation I've been put in due to the purchase of MAB, but I realize it's something that can't be taken personally and I just have to make the best of the situation I'm in. I feel as though I've wasted almost 15 years of my professional life.
Bailey saw her eye surgeon earlier in the week and she said everything looks great! She wants to see Bailey again in about 6 weeks. That was excellent news! We're gradually increasing her tube feeds in hopes that she'll continue to gain weight. Hopefully I can get her coordinator for our Early Intervention program to call me in the next few years (sarcasm) to approve her Speech Therapy. I find it hard to accept that someone that is so important in your childs development can make a comment about how she hasn't checked her mailbox in several weeks, or how it takes numerous phone calls just to get one simple return call. I guess some people are employed because the employer needs a warm body to fill a slot.
Trish
It's nice working again. However, I miss knowing what I'm talking about. Management is management, but the terms are different from one industry to the next. So for me, min/max is Build To, POS is something totally different (I forgot what it is now), but VOCs are still VOCs... whew! Sometimes I get very angry about the situation I've been put in due to the purchase of MAB, but I realize it's something that can't be taken personally and I just have to make the best of the situation I'm in. I feel as though I've wasted almost 15 years of my professional life.
Bailey saw her eye surgeon earlier in the week and she said everything looks great! She wants to see Bailey again in about 6 weeks. That was excellent news! We're gradually increasing her tube feeds in hopes that she'll continue to gain weight. Hopefully I can get her coordinator for our Early Intervention program to call me in the next few years (sarcasm) to approve her Speech Therapy. I find it hard to accept that someone that is so important in your childs development can make a comment about how she hasn't checked her mailbox in several weeks, or how it takes numerous phone calls just to get one simple return call. I guess some people are employed because the employer needs a warm body to fill a slot.
Trish
Thursday, March 13, 2008
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