Labs and Doctors... the End is Near

Well we went to see the pediatrician today and do labs. Everything went well and her labs look great. She isn't gaining weight, which isn't good, but with surgery coming up in just a few days the doctor didn't want to increase her flow of formula. If she gets too much fluid she could go into heart failure again, and we're trying to keep her healthy until Tuesday. A few obstacles today though, labs weren't ordered so our 6:30 start to the morning didn't go as smooth as I had hoped, and the end of Bailey's g-tube popped open and I now have formula on my shirt and pants. Not a big deal though, it'll wash. I also met a mom of an 11 year old Down syndrome girl today. She was great and very positive. It's nice to talk to people that have positive experiences and understand what you're feeling.